Roots Of R.O.C.K.Charlotte
Pages
What Is R.O.C.K.?
We are continually growing to meet the demand of support for those new to the gluten free lifestyle. Members have one special bond: raising a family that has a child or children that must remain gluten-free.
It is a challenge to live strictly gluten free. Our meetings focus on solutions. We meet monthly to share information about gluten-free products, shopping for food, dining out, diagnosis, and other frustrations and joys that come along with being the parent of a gluten free child.
The children, our "R.O.C.K. Stars," get to have R.O.C.K. parties once a month and focus on the benefits of friendships with others who understand their challenges and victories. R.O.C.K. Charlotte also gets involved in other events from going strawberry picking to doing Celiac Awareness through Health Fairs and events.
Organization Goals:
R.O.C.K. (Raising Our Celiac Kids) in Websites
Support Groups National & International
Fayetteville, AR
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Melanie Faught
Fayetteville, AR 72704
(479) 582-9232 melaniefaught@cox.net
Slocomb, AL
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Nichole Alexander (334)-886-7150 mamma-hen3@hotmail.com
Chugiak, Alaska
ROCK'n Alaska
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Debbie Saddler
(907) 688-6879
alaskadebbie@gmail.com
Scottsdale, AZ
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Jennifer Fabiano jfabiano@cox.net (480) 905-2622
Tucson, AZ
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Liz Attanasio (520)- 877-9181
mailto:lizinbox@aol.com
Tucson, AZ 85750
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Shelli Hanks (520)-577-0774 mailto:TucsonROCK@comcast.net)
Campbell, CA 95008
Bay Area ROCK
Contacts: Kelly Fowell Velez kellyvelez@comcast.net or 650-303-8409
and Debbie Duncan debbie@debbieduncan.com or (650) 494-6959
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Conejo Valley, CA
ROCK'n Conejo Valley
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Melissa Riches 818-706-0197 melissa.riches@sbcglobal.net
Corona, CA (Inland Empire)
Meets the 3rd Saturday of each month
Time: 1:30- 4:30 p.m.
Location:
Autism Behavior Consultants 1880 Town & Country Road Building B-101 Norco, CA 92860 - Located off the 15 Freeway (Take 2 nd street or 6 th street exit) Off Hamner
Please contact Christy Crider via email at christycrider@comcast.net .951-737-9779
(Note, TACA is not affiliated with ABC.) Child care is not offered at this time, sorry.
Mailing address for TACA Inland Empire is : 1539 Iris Grove Drive, Corona, CA 92881
Costa Mesa, CA Orange Country
Date: 2nd Saturday of each month
Time: 1:00-4:00 pm
Location: Vineyard Newport Church / Christian Fellowship – 102 Baker St. East, Costa Mesa
Directions: Off the 405 freeway exit Bristol, go SOUTH, turn left on Baker. Turn left on the 55 freeway access road and make the first right info the church parking lot.
Contact: please contact Lisa Ackerman via email at tacanow@cox.net
Danville, CA - Support Group
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Ann Reigelman e-mail: areigelman@yahoo.com
El Dorado Hills (Sacramento), CA - Support Group:
Contact: Beth Kassis
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: bethyk@pacbell.net
Irvine, CA - Support Group:
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Evelyn Tribole
E-mail: ETzzzzzzzz@aol.com
La Mesa, CA - Support Group:
Contact: Amy Unger-Weiss
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: Unger-Weiss@worldnet.att.net
Los Angeles, CA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Amy Harley – 818 – 249-2432 harleyhome@earthlink.net
Cheryl Cohen – 818 – 784-4516 cohencheryl@yahoo.com
Moreno Valley, CA
Contact: Kellee Shearer (951) 242-8448 Treshearer@aol.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Orange County, CA -
Contacts:
Amanda Fraser afraser825@hotmail.com
Randi Leinen RMLeinen@aol.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Pasadena, CA
Parent's Dietary Support Group
Meeting Place: Wild Oats in Pasadena (California/So.Lake)
For more information contact host, Sally Stewart at pasmktmgr@wildoats.com.
San Diego, CA
Contact 1: Becky MacGregor
E-mail: cyberbeck@gmail.com
Contact 2: Erica Welker
Tel: (760) 268-0622
Internet: http://www.celiackids.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
San Diego, CA
Typically meets the fourth Tuesday of each month
Time: 6:30pm-9:00pm
Location: Rancho Bernardo Community Presbyterian Church - 17010 Pomerado Road, San Diego, CA 92128 - Rooms 22 A&B
Contact: Please contact Becky Estepp restepp@sbcglobal.net or Mary Fry mfry1@san.rr.com
Child Care: This is NOW available. We only offer childcare WITH RESERVATIONS. If you do not have reservations we will have to turn you away. For more information please contact Becky Estepp restepp@sbcglobal.net.
San Diego, CA
Contact: Danna Korn - National Contact
Raising Our Celiac Kids - R.O.C.K. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Encinitas, CA
E-mail: danna@celiackids.com
Internet: http://www.celiackids.com/
San Francisco, CA
Contact: Jackie Corley
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: Jacqueline_Scott_Corley@cand.uscourts.gov
Santa Barbara, CA
Meetings are held at different places the 3rd week of the month. For information and to get on our email list contact:
Debbie Hosseini at: hosseini58@cox.net
or Linda Woods at: sbcalinda@cox.net.
Sebastopol, CA
Rock North Bay Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Jennifer Iscol iscol@aol.com 707-824-5830
South Bay, CA
Meets the 3rd Monday of every month
Location: Whole Foods, Torrance
Contact: Tracy tracy@southbaygfcf.org
Temecula, CA
The Center for Autism and Related Disorders, Inc. is providing a free parent support group. Information about biomedical interventions as well as GFCF information.
Date: Meets on second Tuesday of Month
Time: 6-8 pm
Location:
28991 Old Town Front St. Suite 208
Temecula, Ca 92590
This meeting will include speakers as well as an opportunity to meet with other parents. For more information please call Samantha McLean at 951-699-8640 or email at s.mclean@centerforautism.com. This meeting is open to anyone and we would love to see new people attend!
Torrance, Los Angeles area
Date: Meets the 3rd Monday of each month
Time 6:30-9:00 p.m.
Location: Whole Foods Market - 2655 Pacific Coast Hiway - Torrance (@ the Rolling Hills Shopping Center)
Contact: Beth Muholland via email at bethandkenm@msn.com
Child care is not offered at this time. Sorry.
Valencia, CA
Biomedical/GFCF Diet Support Group
Sponsored by Santa Clarita Autism Asperger Network
Date: 4th Thursday of the month
Time -7:00 p.m. to 9:00 p.m.
Contact Information - Email mm.heid@gmail.com to RSVP and get location info.
Check our online calendar at http://www.scaan.org/ to confirm date each month.
We also have general autism and Asperger Syndrome support group meetings in the mornings and evenings.
Check online calendar for details.
No kids please
Visalia, CA (central)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Shannon Williams (559)- 741-1671
Rock_Visalia@webtv.net
Visalia, CA
Talk About Curing Autism of the Central Valley
Date: Every 3rd Wednesday of each month
Time: 6:00-6:30pm “Happy Hour” with GFCF Snacks & Coffee for Support
6:30-8:30pm is the education portion with a speaker
Location: Kaweah Delta Multi-Service Center Auditorium, 402 W. Acequia, Visalia.
Contact: Lynne Arnold via lsarnold@earthlink.net
We are sorry but child care is not offered at this time.
West Hills, CA (the Valley)
Typically meets the 1st Saturday of each month
Time: 7:00-9:00 p.m.
Location:
Jumping Genius
22750 Roscoe Blvd
West Hills, CA (the corner of Roscoe Blvd & Fallbrook Ave)
Contact: Please contact Moira Giammetteo at moira@netzero.net or Cathy Beier at mailto:tacanow@cox.net
Child care: This is not offered at this time, sorry. Because of liability insurance limitations of the donated facility there are no exceptions to this policy, we are sorry.
Erie, CO
GFCF Diet Support Group
For more information contact Emmy Conroy 303-664-1295 or e-mail mailto:303-664-1295Emmyconroy@earthlink.net
D.I.S.H. Dietary Intervention Support and Hope
Time: 7:00 -8:30 pm
Contact: Phyllis dzerman2@yahoo.com 970-206-4979
Littleton, CO (Denver area)
Randy & Kim Toltz (303)-470-0003
randy@thetoltzgroup.com
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Trumbull, CT
ROCK'n Connecticut
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Susy Ferreira 203-268-5071 sferreira5071@charter.net
Waterford, CT
Raising Our Celiac Kids - R.O.C.K. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Donna Kensel CtCeliacKids@aol.com
Celebration, FL (Orlando)
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Rose Parvaz rose.parvaz@celebration.fl.us
Coral Springs/Palm Beach
Contacts: Janna Faulhaber and Stacey Galper
Tel: (954) 255-7855
E-mail: Staceynagel@paxson.com
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Ft.Lauderdale/ Plantation FL
GFCF Diet Support
Where: Whole Foods (Plantation) cafe
When; 3rd Tuesday of every month
Time: 7-9 PM
Orlando, FL
Date: First Sunday of each month
Time: 1pm-3pm
Location:
Florida Hospital Orlando (Barker Conference Room)
601 E. Rollins Street
Orlando, FL
Contact: Deborah Pfeifle dpfeifle@earthlink.net
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Melbourne FL
GFCF Diet Support Group Meeting
First Sunday of each month
2:00 p.m. - 4:00 p.m.
Meeting Place:
Member's house rotation
For more information:
e-mail Melvin & Laura Cairns
mcairns806@aol.com
Odessa (Tampa), FL
Raising Our Celiac Kids (R.O.C.K.) Odessa Chapter
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contacts:
Terri Willingham willinghamster@gmail.com
or Melissa Randsdell melrans@verizon.net
Oviedo, FL
"Food For Thought" GFCF Diet Support Group
Date: 2nd Saturday of Every Month
Location: contact Karen Howington at 407-359-0356 or khowington@mindspring.com
or Laura Costanzo at 407-249-5575
Children are welcome.
The group was started to help new families get started and have a contact person but our members range from those who have been on the diet for years to those even considering trying it. We welcome anyone with an interest to help their child feel better!
Palm Beach Gardens, FL
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contacts: Kimberly Wade tkcrw@comcast.net 561-625-9005
Sarasota, FL
Biological Interventions for Autistic Spectrum Disorders (BIASD) http://www.biasd.net/
Meetings: Second Friday of every month
Time: 6:30 p.m
Location: Whole Foods
1451 1st Street
Sarasota, Florida
Contact: Cassie Gorton biasd4u@verizon.net
Tampa, FL
Contact: Melissa Ransdell
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail:melrans@tampabay.rr.com or (813) 265-8105
Atlanta (North Geogia)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Children's Center for Digestive Health Care
Contact: Jeff Lewis, M.D. mailto:jlewis@ccdhc.ort
St Marys
A new GFCF Diet Support Group is being started in St.Marys. GA.
For all those interested you may contact Carolyn and Mike Wright cwright@camden.k12.ga.us
Treasure Valley, ID
Treasure Valley Rock Support Group. (Rockn’ in the
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Summer Boyle phone: 208-585-9491; e-mail: csboyle6@msn.com
Chicago, IL
ROCK'n Chicago 60616
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Alexandra Vavouliotis 847-962-7244 or alexvav24@mac.com
DeKalb, IL
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Audrey O'Sullivan email: Audrey08@aol.com Tel: (815) 756-2606
ROCK'n Illinois (Moline 61265 )
Naperville/Wheaton, IL
Date: fourth Wednesday of each month
Time: 9:30 a.m. to 11:00 a.m.
Contact: Please RSVP to Carolyn Lewis Carolyn@DietarySupport.com
Location: Whole Foods Market
607 W. 75th Street
Naperville, IL 60564
Children are always welcome! We share recipes and ideas for getting children to eat the healthiest food possible, and we always have goodies to sample that are gluten and casein free. We also take a few minutes each month to tour the store to see what's new. The group will continue to share allergy free recipes for those intolerant to dairy, corn, soy, and other allergens in addition to gluten-free recipes.
Peoria, IL
GFCF Diet Support Group for the Greater Peoria IL area.
Date: First Monday of each month
Time: 7:00 p.m. to 8:30 p.m.
Location: Peoria First Church of the Brethren
4714 N. Sheridan Rd., Peoria, IL.
For more information contact:
Kelly Buster
Springfield, IL
GFCF Celiac (and Autism) Support Group Meetings
St. John's Hospital, Rm. R & S
Springfield, Illinois
All our meetings are at St. John's Hospital, Rm. R & S, Sundays, 2:30-4pm ALL meetings are free, and there is no membership fee.
For more information contact: Bev Smith, (217) 544-7962 or e-mail msomac@earthlink.net
Leader: Joyce Hall Joychll@aol.com
Co-Leaders- Barb Hand & Jane Gines
For parent support for gfcf diet/autism/ADD/ADHD in central Illinois, contact: Diane Wilson, wilsonx4@madisontelco.com
Marseilles, IL
GFCF Diet Support Group
Marseilles Fire Station
205 Lincoln Street
Contact: Sherri J Mathews for information 815-795-4260 or e-mail dmathews@bb-elec.com or ffwyf21@hotmail.com
Contact: info@hoiceliackids.com
Bloomington, IN
Biological Interventions in Autism
Contact: Jody Goddard
Telephone:(812) 876-3311 momtobandj@bluemarble.net
ROCK'n Indiana (Henryville 47126)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Indianapolis, Indiana
Biomedical Interventions Support Group
Contact: Alison O'Malley comalley@indy.rr.com
Support group for parents who are using biomedical interventions for their children with autism spectrum disorders.
Meets 2nd Monday of month/7:00 p.m.
Theraplay
9919 Towne Rd.
Carmel, Indiana 46032
http://www.childrenstheraplay.org/
In addition to dietary issues, we discuss other medical interventions/research and have speakers on a regular basis.
Mooresville, IN
Contact: Cindy Holder
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: Holders2@comcast.net
Davenport, IA
The Iowa Quad City Biomedical Autism Group
GFCF Diet Support
2nd Thursday of each month
Time: 7:00-9:00 pm
For more information contact:
Kristal Shaff 563-522-2035 kristalshaff@yahoo.com
website: http://www.quadcityautism.com/
Des Moines, IA
Contact: Mary Curran
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Des Moines, IA
E-mail: curran621@mindspring.com
Des Moines, IA (50312)
For more information contact: Lindsay Amadeo llamadeo@yahoo.com 515-274-3874
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Waterloo, IA
Cedar Valley Autism Spectrum Dietary Network
Meeting: Monday, December 6
Time: 6:00 P.M.
Topic: GFCF baking and cooking for the holidays
Location: contact Amy for address robertsa@mchsi.com or 319-230-9260
Lenexa, KS
Spectrum Parents Intervention Network Meeting (Spin)
Date: This event repeats on the third Friday of every month.
Time: 7:00 pm - 9:00 pm
Location: Great Plains Lab
11813 West 77th Street (The lab is located 1 block east of 77th and Quivira. )
Hosts: Robin D. Weber & Lori Knowles
Information: 913 322-9196
For more information go to: http://invites.yahoo.com/dac3b3243162rgly-gh6z4d23/
Louisville, KY
Health & Harvest Natural Food Markets
3030 Bardstown Road
Louisville, KY 40205
Contact: Cathy Derringer
502-499-7261
Email at: Fightingautism@aol.com
Alexandria, LA
Autism Resources Intervention Support and Education
A.R.I.S.E. Network
Contact: Monica Dennis, Secretary A.C. 318-466-9853
or Flo Thibeaux , Vice-President 225-753-9850
Support group for autism and sensory-challenged individuals Support group working one-on-one with families, any issues related to autism and the GFCF Diet.
Living Foods II
Baton Rouge, LA
225-767-8222
Gorham, ME
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Nicole Richman (207) 893-2712 e-mail: nrichma1@maine.rr.com
Somerset, MA
ROCK'n Somerset (MA)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Stacey Nasrallah and Imad Nasrallah phone: 508-674-6211
e-mail: info@somersetrock.org OR www.somersetrock.org
Website: http://www.somersetrock.org/
Annapolis, MD
Rock'n Maryland
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Steffani Mykins stfine@comcast.net 410-626-1958
Damascus, MD (DC area)
Contact: Andrea Howe
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: andreahowe@juno.com
Gaithersburg, MD
Maryland Autism Recovery Coalition (MARC)
Contact: RSVP Cyndi Greene (301) 770-5020 cjgreene@starpower.net
GFCF Diet/SCD Diet Support Groups and Free Workshops
Mount Airy, MD
Free-Mealers GF/CF Diet Support Group
Location: St. James' Episcopal Church
1307 North Main Street (Note: New church location)
Mount Airy, MD 21771
Contact: Anna Letaw 410-795-7950 annaletaw@comcast.net
A discussion and support group for parents and caregivers of children with autism and autism spectrum disorders, who are, or are considering avoiding gluten, casein and other foods in their children's' diets. The topic of biomedical intervention is also discussed. Speakers and other events scheduled throughout the year.
Dates: Second and Fourth Tuesdays each month
Time: Second Tuesday 10AM-12PM **Children are allowed at Second Tuesday meetings only see below
Time: Fourth Tuesday 7PM-9PM , NO children allowed at Fourth Tuesday meetings.
For postings about future meetings see http://health.groups.yahoo.com/group/Free-Mealers
**Children allowed at Tuesday meetings only with the following caveats:
* There are a few toys there, but, I encourage parents to bring some of their own.
* The church IS concerned about their new floor and does request that children not bang their cars on it…so please keep that in mind
when bringing your toys.
* The church office is nearby and is fine as long as the children's noise does not interfere with the office. I do provide a small cotton rug
that helps with noise and protects the floor.
* We meet next to the sanctuary and do not have our own room. Children need to be able to stay close by and not run in the sanctuary.
The North VA, MD and DC Metro Area R.O.C.K. Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Linda Hickman phone: 410-290-5224
email: hickman68@verizon.net
Becket, MA
Seminar - "The Power of Natural Healing"
July 28 to August 3, 2008
Babson College
Wellesley, Mass.
Gluten Free / Vegan meals options. 45 experts present over 100 classes on natural healing methods plus social events and entertainment. Day passes or weekend packages available. http://www.thepowerofnaturalhealing.org/ or call 1-800-975-8744.
Longmeadow, MA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Christie Freda cfreda@comcast.net 413-567-5748
West Boylston, MA
Autism Resource Center of Central Massachusetts
360 West Boylston Street Suite 204
West Boylston MA
508-595-9101 - Ask for Sue
Ferndale, Romulus & Novi, MI
Contact: Stacy Hunter
Email: StacyHunter@comcast.net
All families of children with autism are welcome.
Monthly support group meetings
Online listserv
Special events and family outings
website: http://www.geocities.com/EverydayMiraclesAutism/
Howell, Michigan
ADIG: Autism Dietary
Meetings: Third Tuesday of every month
Time: 7:00- 9:00 p.m.
Location: St. Joseph's Church, 440 E. Washington St., Howell, Michigan
Network of participating doctor's, neurologists, nutritionists, therapists, and stores. Support provided in areas such as nutritional diet (gluten free, casein free/ even soy, corn, and rice free diet information is available), chelation therapy, and motion therapy (yoga). Occasional Guest Speakers/ Monthly Newspaper Meeting Information
For more information contact:
Deanna Seng dkseng99@voyager.net
ROCK'n MI
Contact: Kimberly Fanelli
Phone: (586) 226-8480
e-mail: kfanelli@mac.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
West Bloomfield, MI Chapter- Support Group:
Contact: Gail Smoler
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: GailS63@aol.com
Plymouth, MN
Diet support group in the Twin Cities
For more information contact:
Libby Bergman: 763-550-0806 Libbybill@aol.com
Minneapolis/St.Paul, MN Chapter - Support Group:
Contact: Lynda Benkofske E-mail:ljbenkof@ties2.net
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Columbia, MS Chapter - Support Group:
Contact: Beth Broom
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: sky@zzip.cc
Farmington Missouri
Contact: Beth Yount email bayount@earthlink.net 573-431-2934
O'Fallon, MO
Contact for more details: Beth Anne Miller 636-294-2037 frankbethm@aol.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
ROCK'n Montana
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information
Contact: Perrin Grubbs perrin@bresnan.net (406) 655-7897
Columbia Falls, Montana
Gluten/casein free diet and other biomedical issues for kids with autism/ADHD
Contact: Kristi Jankovsky kristij@montanasky.net (406) 892-1934
Blair, Nebraska
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Shelly Andreasen shellyrn@gmail.com
Reno, NV
Contact: Carrie Owen
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Phone: (775) 857-2708
email: owen4some@charter.net
Bow, NH
NH Dietary Intervention for Autism and Related Disorders
Date: Third Tuesday of each month
Location: Community Bridges
Contact: Dawn Marquis heartmom2two@yahoo.com or 603-435-5313 for more info
We cover all aspects of dietary intervention including intro to GFCF, other food sensitivities including soy, phenols, corn, rice, rotation diets, dyes, etc, etc. We offer monthly group meetings, email list, recipe swaps, general info to diets and other resources.
Our website is: http://www.p2pnh.org/nhdi
Hampton, NH
"Seacoast Dietary Intervention for Autism"
Meetings are once a month during the school year. If you would like more information contact Peg Tipton 603-929-3862 mailto:peg.tipton@comcast.net or Dawn Brady 603-474-6529 brady-family@comcast.net
Manchester, NH
ROCK'n New Hampshire
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For More Information contact:
Michelle Ouellette rocknh2006@gmail.com 603-627-1831
Cherry Hill, NJ
Support Group for Adults and for Parents of Children who maintain a restrictive diet avoiding gluten.
Meetings every other month .
For more information:
Contact Donna donna@bellmanor.com
856-354-8642.
Blairstown, NJ
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For More Information contact: Marla Benson MBenson890@aol.com (808) 362-7752
Marlboro, NJ
Freehold Chapter "Raising Our Celiac Kids (R.O.C.K.)" We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For More Information contact:
Elissa Carlin
Marlboro, NJ 07746
732-252-8309
ElissaC75@aol.com
ROCK'n New Jersey (Morristown 07960)
Hackensack, Bergen County, NJ
Mosaic Group
Meetings 3rd Wednesday of each month 8:30 p.m. to 10:30 p.m.
The Arc of Bergen & Passaic Counties
223 Moore Street
Hackensack, NJ
201-343-0322
Various biomedical interventions & related educational methods (including GFCF Diet Therapy) All are welcome. For more information join our listserv at Mosaic-List@egroups.com or contact Barbara Strate at 201-944-3321
North Jersey Chapter
"Raising Our Celiac Kids (R.O.C.K.)" We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Ellie Fried 973-912-9253 ejkf54@hotmail.com
Albuquerque, NM
Cedar Crest (Albuquerque), NM 87008
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Traci Shrader
(505) 450-1156 or email tashrader@msn.com
Auburn, New York
ROCK’n
For more information contact: Nicki Hai: jnhai@roadrunner.com
Bedford Hills, New York
GF/CF support group for parents experienced or new to the diet. Opportunity to share resources, products and information.
For more information contact: Sue Bronic Bronicos@msn.com
Jamesville, NY
ROCK'n Upstate New York
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact:
Karen Dorazio
Jamesville, NY 13078
kdorazio@twcny.rr.com 315-469-8154
Lake George, NY (Glens Falls Region)
ROCK'n Upstate New York
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Lisa Fox 518-668-5838 fox_lisa@hotmail.com
Long Island, NY Northern Nassau County
Raising Our Celiac Kids (R.O.C.K.) - Long Island Chapter Northern Nassau County
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact:
Contact: Jill Schneider chairman jahms@optonline.net 516-551-4564
Randi Albertelli co-chairman rsquared31@optonline.net
Long Island, NY Suffolk County
Raising Our Celiac Kids (R.O.C.K.) Suffolk County
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Jamie Flecker co-chairman 631-846-9384 candlesbyjamie@yahoo.com
Lynbrook, NY (South Nassau)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. Group is limited to south Nassau activities.
Contact: Angela Silverstein (516) 593-2904 venusangmm1@optonline.net
Manorville ,
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Christine Lauria (631) 745-5996 eastendrock@yahoo.com
New York City
For more information contact: Melanie Meyers Cushman
e-mail:http://health.groups.yahoo.com/group/GFCFKids/post?postID=yhoQ5_y4jRdblGtVn5wXXbKpLWgk5J25aZDDXl2jWCIA0oG6UHxjsvldJIVsESNqhrwBUhDRvO4K_hg or 212-473-4766
Rome, NY
Mohawk Valley R.O.C.K. (upstate New York)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For More Information contact:
Rebecca Madeira 315- 337-7671celiacparents@earthlink.net
Williamsville, NY.
Support Group
Meetings on the third Wednesday of every month from 7:00 to 9:00
HSBC Bank Building
Transit Road
Williamsville, NY
We have parents and many teachers in attendance. We've started a GFCF co-op through Northeast Cooperatives. Membership into the co-op is a one-time $8.00 per family charge. (Meetings are free) We are located on the third floor of the HSBC Bank Building, Transit Road, near Main Street. For more information, contact Kathy at kazoo@pcom.net or Michelle at mailto:chsjer25@aol.com We discuss meal ideas, shopping tips, recipes and health issues.
Asheville, NC
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Marzieh Davis
marzieh@skyrunner.net
Cary (near Raleigh), NC
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Andrea Otken-Dennis (Andrea Dennis)
Tel: (919) 303-4518
E-mail: adennis@ipass.net
Huntersville, NC
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Nikki Everett
phone: (704) 804-4090
E-mail:mailto:haircolorexpertise@hotmail.com
Bismarck, ND
Central ND Celiac Resource Group.
First Saturday of even months (Dec., Feb., April, June, etc.)
11:30 am
Great Plains Rehabilitant Services
Contact: Lila Brendel 258-7800
Fargo, ND
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Stacey Juhnke (701) 237-4854 dsjuhnke@yahoo.com
Akron, OH
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Sue Krznaric skrznaric@cs.com (330) 253-1509l
Cincinnati, OH
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Beth Koenig BethKoenig@cinci.rr.com
Toledo, OH
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Amy Kinkaid kinkaida@bex.net 415-509-6913
Lake Oswego, OR
Parent's of Children with Autism
GFCF Diet Support Group
Oswego Heritage House
380 10th
Lake Oswego, Or 97034
Support group meetings held every 3rd Thursday of the month
Time: 7:00 p.m..
Contact: Juliana Hunt 503-722-2265 juliana22hunt@msn.com
Portland-Vancouver Gluten Intolerance Group
Support group meetings for Gluten Intolerance
(Note: no meetings in January or August)
Time: Saturday mornings.
Location & Information contact:
Joanne Galloway 360-695-5568 jagoheen@pacifier.com
Editor of Gluten-Free News
& Learning to Live With a Gluten-Free Diet
OR
J. Huffstutter jeannehuff@aol.com
Salem, OR
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Kristen Klay (503) 581-3884 kristenklay@yahoo.com
Bethlehem Chapter (Allentown area)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Kate Panagia
E-mail: kapanagia@yahoo.com
Lansdale, PA (ROCK Bucks / Montgomery County)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. Contact: Holly and Steve Staugaitis
Phone: 215-997-2706
E-mail: hollyberrywdw@comcast.net
Camp Hill ,
4th Tuesday of the month
Time: 6:30 PM
Location: Camp Hill Giant Community Room, Camp Hill, PA
Contact: Joy Fasick 732-8400 ext.8120 Email - Asdhope1@yahoo.com Web – www.asdhope.org
Whether you’re just starting the gluten-free, casein-free diet or have been at it a while and feel like you’re stuck in a rut, you may be looking for new ideas about how to make it work for your family. Join us as we discuss some challenges and solutions for successful implementation of the diet.
The group will meet monthly at the Camp Hill Giant for an opportunity to relax, talk with others in similar situations, and learn from each other. Topics will be determined by the needs of those involved, but will likely include food diaries, replacement ingredients, recipe swap, where to find specific foods, eating away from home, GFCF holidays, and more.
An outreach of ASD HOPE, the GFCF Support Group is facilitated by Joy Fasick, a mother who has seen tremendous improvements from her son’s two gluten-free, casein-free years and who also balances additional food allergies/restrictions in the family diet.
Supper/snacks can be purchased in the marketplace; no outside food
(Please note that childcare will NOT be provided for this event.)
Erie, PA
GFCF Parent Support Group Meeting
Parents in Northwestern PA and Northeastern Ohio are invited to attend the GFCF Parent Support Group Meeting. Bring questions and tips to share. The Intermediate Unit is going to sponsor a parent training in January which will also be discussed.
For more information contact:
Christine Svetz, CPA at csvetz@gremlan.org.or (814) 336-3938
Hill, Barth & King LLC
15942 Conneaut Lake Road
Meadville, PA 16335
Greensburg, PA
A local group meets bi-monthly to discuss the GFCF diet and how to plan a GFCF lifestyle
For more information contact April at e-mail asteffey@wpa.net.
Greenville, PA
Contact: Fiona Garner garner6@archgate.net
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
ROCK’n
Contact: Melissa Panzer 717-633-1667 Glutenfree4life@live.com
Pittsburgh, PA (Gibsonia area)
Biomedical Interventions for Autism Spectrum Disorders: A forum for families to share information and support.
Date: 3rd Thursday of every month
Time: 7:00 pm
Location: Family Behavioral Resources, 4156 Kenneth Drive, Gibsonia, PA 15044
Call 724-443-5859 Dan Hollenbeck or e-mail info@fightingautism.org for more information.
Lititz (Columbia, Lancaster), PA
Raising Our Celiac Kids (R.O.C.K.) - We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Janelle Gregory 717-687-8586 janellegregory@verizon.net
Newtown, PA (Bucks County)
Gluten-free Casein-free Support Group Meeting
First Thursday of every month (schedule change during June, July & August)
7:00 PM - 9:00 P.M.
Autism Spectrum Resource Center
14 S. State Street
Newtown, PA
(2nd floor above Newtown Travel)
Bring a favorite gf/cf product or recipe. Or if you are new to the diet, just come and listen and get support. $5 per person donation payable at the door. This group meets monthly. For more information and to RSVP contact Elsie McHale eljoco99@comcast.net or (215) 230-9264
If inclement weather, I will e-mail any cancellation by 5:00 pm that day or call me at the above number. To learn more about the Autism Spectrum Resource Center, please go to http://www.autismsrc.org/
Clover, SC 29710
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Lauretta McInnis laurettamcinnis@gmail.com 803-222-5143
Sioux Falls, South Dakota
September meeting
Location: Brandon Chop-Chop restaurant
Time: 6:30 p.m.
The restaurant makes a gluten free pasta and will let us know what toppings are gluten free for us to use on it.
Contact for further information: June 605-528-6189 or Grace 605-582-7194
Germantown, TN
Autism Spectrum Disorder Support Group
CONTACT:
Laura Corby for more information Phone: 758-8288mailto:laura@autismsolutioncenter.com
Date: 2nd Sunday each Month (unless otherwise noted)
Time: 6:00pm - 9:00pm
Location: Studio B - 751-1660
2115 Merchants Row
Germantown, TN -Saddle Creek
Between El Porton's and Garibaldi's
PURPOSE: To assist parents in obtaining the necessary information and resources to access appropriate biomedical, educational, and therapeutic care for loved ones with ASD's.
Note: We deal with all Autism Spectrum Disorder issues, so our topics and speakers can very greatly! We do have a GFCF Diet Committee that meets to discuss these issues and new info. They also plan community education/informational projects, etc.
DETAILS: we will meet the 2nd Sunday of each month at 6:00pm in the same location. (Unless otherwise specified.) We plan to have informational guest speakers at most meetings and also plan to participate in information swaps, co-op purchasing, planned group activities and outings, and other related activities. We will also be discussing biomedical treatment issues in ASD's. ** Childcare is available only if advance reservations are made to insure adequate childcare coverage. http://www.autismsolutioncenter.com/
Nashville, TN
Raising Our Celiac Kids (R.O.C.K.) - Nashville Chapter
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Janet Lowery
email: janetlowery@comcast.com
Tel: 615-758-2674
Woodlawn, TN
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Shantal Green
931- 648-2289
skgreen@syberwerx.net
Austin, TX (Four different Support Groups listed below)
#1 Autism Treatment Forum www.autism.meetup.com/229/.
Sponsored by the Autism Society of Greater Austin
The Forum is a group of parents and others interested in the dietary, nutritional, and bio-medical treatment of autism spectrum disorders. Sometimes the Forum will have a speaker, other times there will be open discussion. Everyone is welcome.
Date: 1st Wednesday of every month (except major holidays)
Time: 7:00 p.m. - 8:30 p.m.
Location:
Old Quarry Branch of Austin Public Library
7051 Village Center Drive
Directions: From Hwy 360, go east on Spicewood Springs Road,
turn right onto Mesa, turn left onto Far West,then turn right onto Village Center Drive. Located just off Far West Blvd, between the Post Office and HEB.
For more information, contact Dianne Doggett, Forum Coordinator, at GaryDianne@aol.com.
Support Group Meeting
5604 Southwest Pkwy. #3113
3rd Thursday of every month
7:00 p.m.
Everyone is welcome who wants to learn a gluten-free, all natural, healthy approach to eating. For more information contact:
Kay Stence, Support Group Leader 512-442-4008 kstence@marykay.com
#3 ROCK'n Austin zip code: 78739
Alamo Celiac GIG Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Frances Kelley fkelley@austin.rr.com 512-301-2224
#4 The Austin Celiac-Sprue Support Group
Tarrytown United Methodist Church
2601 Exposition Blvd, Room 208
The group usually meets quarterly. All interested persons are invited to attend.
For further information please contact Francie Kelley at 512-301-2224 or email at fkelley@austin.rr.com
Dallas-Fort Worth, Texas
Special Diet Support Group
Healthy Approach Market
5100 Hwy 121
Colleyville, Texas 76034
4th Tuesday of every month
7:00 pm-8:30 pm
RSVP: (817) 399-9100
For more information about this group contact Mika Williams at (817) 498-9881 or if out of the local DFW area: (800) 498-6386. This organization will further the understanding and implementation process of special diets to aid in the treatment of Autism & related developmental disorders. Discussions and presentations will cover, gluten/casein free diet, food intolerance's and sensitivities, allergy testing, nutritional supplementation and help to provide the community with resource information. Healthy Approach Market has over 12 feet of gf/cf foods including flours etc.
Dallas Area Chapter
Dallas/FortWorth - Support Group
Raising Our Celiac Kids (R.O.C.K.) - (Wylie Chapter) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. www.dallasrock.org
Contact: Kelly LeMonds, Leader
1821 Spinnaker Way Drive
Wylie, Texas 75098-7855
Tel: (972) 442-9328
mailto:e-mail:e-mail:leader@dallasrock.org
Dallas-Fort Worth
The Lone Star Celiac Sprue Support Group
Devoted to information dissemination and sharing to help those who have the Celiac disease cope with this life changing disease. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Date: Third Saturday of month
Time: 9:00 a.m.
Location: Presbyterian Hospital of Dallas
For up to date event schedules and contact information, consult our website at http://dfwceliac.org
Ft. Worth, TX
North Texas GF Kids Club. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Betty Barfield, President
North Texas Gluten Intolerance Group
817-967-2804 work
817-577-0212 home
817-967-9697 fax
email: betty.barfield@aa.com
Houston Chapter, TX- Support Group:
Contact: Faye Sallee
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: fsallee@houston.rr.com
Houston - Support Group
Contact: Janet Y. Rinehart, Chairman
Houston Celiac Sprue Support Group
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Tel: (281) 679-7608
E-mail: txjanet@swbell.net
Internet: http://www.csaceliacs.org/
Houston
ROCK'n Houston. Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Monica Ryan phone 713-667-1963 email Mwryan@ipa.net
San Antonio
Contact: Amy Holt
E-mail: info@rocksa.org
telephone: 1-210-481-0659
Victoria, TX.
Contact information: Julie Bauknight (361) 572-9252
email: eavesfamily@cox-internet.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
ROCK'n Lubbock (TX)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Ogden, UT (Salt Lake City area)
Contact: Eileen Leatherow
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
e-mail: e.leatherow@attbi.com
Vermont (Serving all areas of Vermont)
Support group meetings for families and friends of children with autism.
Location: Williston, Vermont
Date: Meetings are held the first Monday of each month
Time: 7 - 9 p.m.
Contact: Lynn George 802-660-7240 Email: LynnMGeorge@adelphia.net
We also offer a free, online listserve for continual support:
http://health.groups.yahoo.com/group/AutismSupportDaily/
Or visit our website at: www.AutismSupportDaily.com
Ashburn, VA 20147
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact:
Keith Bird
Ashburn, VA 20147
703 348 7607 rock@birdmk1.plus.com
Bristow, VA 20136
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Michael and Elizabeth Brown 2xx1xy@comcast.net 703-753-9161
Contact:
Richmond, VA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contacts
Debbie Beam phone: 804-527-3424 e-mail: MikeDebBeam@aol.com
OR Janette Rose phone: 804-556-9171 e-mail: Vamango@juno.com
Virginia Beach, VA
ROCK'n Virginia Beach
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Cynthia Olson e-mail:glutenfreemom@hotmail.com
D.C./Metro Area (Northern Virginia)
The North VA, MD and DC Metro Area R.O.C.K. Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Linda Hickman phone: 410-290-5224
email: hickman68@verizon.net
Bellevue, WA.
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact:
Nick & Sue Pierson 425-401-9163 NicholasPierson@Hotmail.com or Sue_Pierson@hotmail.com
Bellingham, WA 98229
*ROCK'n Washington
Location:
Community Food Co-Op Building
1220 N. Forest St., Bellingham, WA
Dates: We will gather at the Community Food Coop building on Saturday March 10th from 1-3pm. Children are welcome to come and stay with you for the meeting.
Note: Meetings starting in April 2007 through June 2007 will be held the 3rd Saturday of the month at the Co-op Connections building.
Always optimistic in outlook, we can help you find the right places to shop for gluten free grains, flours, and prepared foods. We will be sharing our recipes for gluten free goodies that all ages enjoy.
Facilitated by naturopath- Dr. Jean McFadden Layton
If you need more information, please call Natural Health Bellingham at 360-734-1659.
This group has no dues or fees, donations are accepted to cover costs of the meetings.
Bothell, WA 98001
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
For more information contact: Lynn Ceutcher 425-205-1327mailto:lynnjk@comcast.net
Poulsbo, WA 98370
For more information contact:
Tim & Dawn Simonson timsimonson@csi.com 360-779-9292
Richland, Washington
Neurological Center
Serving the Tri-City area.
Meetings held every 3rd Monday of the month
For more information contact: Vicki at 509-545-5944
Many topics discussed
Spokane, WA
ROCK'n Spokane
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Jennifer Fancher 509-891-7250; e-mail: mailto:jenf@csispikane.com
Vancouver, WA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Theresa Rachetto
phone: (360) 713-1504
theressarachetto@gmail.com
www.vanceliackids.com
Yakima, WA 98908
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Shanta Gervickas Shanta@network7.com 509-965-1130
Washington State
Exceptional Families Network (The Wyatt Holiday Foundation )
http://www.exceptionalfamilies.net/
A Community Outreach Program of The Wyatt Holiday Foundation providing a warm and inviting environment for families of children with special needs to connect, learn, network and enjoy themselves through monthly get-togethers, presentations, workshops, online ventures and events.
We focus on a variety of needs of families, including dietary intervention and many of our families are doing the GFCF diet. Our Board Member, Dr. Liliane Bartha, works dietary/DAN! approach and is very supportive of the GFCF diet.
Families from all walks and wheelchairs of life throughout Washington State can enjoy access to online resources, video and audio conferencing events, helpful documents and a close-knit community.
Hurricane, WV - Support Group:
Contact: Karen Daniel
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
E-mail: krdaniel@suddenlink.net
Beckley, WV
Contact: Janet Lintala, DC @ 304-255-2550
The Autism Recovery Resource Center, PLLC
2401 S. Kanawha St Suite 101
Beckley, WV 25801
Scheduled Workshops
Lending library for the GFCF Diet, the Specific Carbohydrate Diet, as well as others, as well as many, many books on autism, ADHD, and related topics. People can borrow the books for free.
Janet will meet people at our local store to show them how to shop for the diet, plus she can help them adapt their recipes. (All at no charge)
The Autism Recovery Resource Center is a Non-profit biomedical treatment center but office visits are $15, and we raise lots of "angel money" to help those who cannot even afford the $15. We are just trying to be a resource to the area.
Janet Lintala, DC
Defeat Autism Now! clinician
DePere, WI
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Pam Rourke 920-339-7867 mrourke@new.rr.com
Jackson, WI
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Yvonne Schwalen
trainman280@netzero.net
Brooklin - Ontario, Canada
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program.
Contact: Janet Smith Janets100@hotmail.com (905) 655-1208
United States
The principle aim of this list is to provide a discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets. We hope that the discussions will include practical information and tips on following a GFCF (etc) diet; scientific research and opinion; the latest developments in understanding GFCF (etc) diet-related health problems; your personal stories and experiences with relation to GFCF (etc) problems; information on what food is GFCF (etc) and what is not; tips on how to eat out of the house; recipes and tips on how to cook and prepare GFCF (etc) food; what vitamins, minerals, herbs and other supplements may be appropriate for a child with autism, how to cope with difficult diet demands, plus support for parents. Appropriate topics for discussion on the list include anything at all related to diet and autism spectrum disorders-including GFCF but also yeast, nitrates/nitrites, dyes, vitamins, minerals, supplements, dealing with teachers, friends, schools, outings, siblings, testing, etc. Membership necessary, easy and free to join.
List Owners: Cara Lewis and Wendi Dupuy
http://groups.yahoo.com/group/GFCFKids/join
Celiac Disease
What is celiac disease?
Celiac disease is a genetic disorder affecting children and adults. People with celiac disease are unable to eat foods that contain gluten, which is found in wheat and other grains. In people with celiac disease, gluten sets off an autoimmune reaction that causes the destruction of the villi in the small intestine, causing damage and illness.
What are the symptoms of celiac disease?
Symptoms of celiac disease include diarrhea, weight loss, abdominal pain, chronic fatigue, weakness, malnutrition, and other gastrointestinal problems. In children, the symptoms may include failure to thrive (an inability to grow and put on weight, irritability, and inability to concentrate, diarrhea and bloating. Further, people affected by celiac disease may experience extra intestinal symptoms that involve many systems and organs including bones (osteoporosis, arthritis, and joint pain), blood (anemia and bleeding), reproductive system (infertility and reoccurring abortion), nervous system (chronic fatigue syndrome, depression, dementia), and behavioral changes.
How common is celiac disease?
Nearly one out of every 150 Americans suffer from celiac disease, according to a new study by the University of Maryland Center for Celiac Research in Baltimore. The research indicates that celiac is twice as common as Crohn's disease, ulcer. colitis and cystic fibrosis combined. First degree relatives of celiacs (parents, children, siblings) and those with other autoimmune disorders, such as Type I Diabetes and Rheumatoid Arthritis have a much higher prevalence of celiac disease.
How is celiac diagnosed?
A blood test is now available to screen for the presence of specific antibodies. A biopsy of the intestine (before beginning a gluten free diet) is needed to make a final diagnosis.
What are the long-term effects of celiac disease?
Untreated celiac disease can be life threatening. Celiacs are more likely to be afflicted with problems relating to malabsorption, including osteoporosis, tooth enamel defects, central and peripheral nervous system disease, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked to an increased risk of certain types of cancer, especially intestinal lymphoma.
What is the treatment for celiac disease?
There are no drugs to treat celiac disease and there is no cure. But celiacs can lead normal, healthy lives by following a gluten free diet. This means avoiding all products derived from wheat, rye, barley, oats, and a few other lesser-known grains. * http://celiaccenter.org/Facts.html
United Kingdom/Europe
Research Autism (http://www.researchautism.net/) is a UK charity dedicated to research into interventions in autism. Their goal is the improvement of quality of life and outlook, for the individuals affected and those around them. Research Autism has the active support of some of the world's leading figures in autism and research. They have given freely of their time and expertise to work with them. They also work closely with their research sponsor, the Autism Research Centre at the University of Cambridge, as well as with the National Autistic Society.
They are also interested in hearing from anyone who would like to tell their experiences of using a particular autism intervention – whether positive, negative or mixed.
UK Informative GFCF Website
Information, Products, Support, Contacts, Events, etc. for GFCF in UK.
www.groups.yahoo.com/group/GFCFkidsUK
At this time the group is not active. However, there are archives from past postings which can be searched. This group is for any parent implementing the GFCFdiet in the UK or Europe. This list is not moderated and unrestricted. It is principally to provide a discussion forum for parents of children on the autistic spectrum who are avoiding gluten and casein in their diet. It is hoped that it will also provide information and support to anyone who is following a GFCF diet either personally or with their children. All related topics are welcome.
R.O.C.K. is a support group for parents, families and friends of children who cannot tolerate gluten in their diet. Families implementing a
gluten free and casein free diet as therapy for their autistic spectrum children are also welcomed. Group meetings help parents deal with
the unique challenges which include:
Finding "fun" gluten-free treats for kids
Menu ideas for school lunches, quick dinners, and sports snacks
Helping the kids to take responsibility for reading labels, cooking and planning/preparing food
How to prepare for unexpected birthday parties and food-oriented activities at school, church, and elsewhere
Halloween, Easter, and other special days - how do we include our kids safely?
Educating day-care providers and teachers - without burdening them
Dealing with grandparents, babysitters, and "helpful" friends who offer gluten-containing foods to our kids
Ensuring our kids won't cheat, and what to do WHEN they do
Sending kids away to camp, friends' houses, and other times when we're not around to help